Welcome!

I have created this page after my own frustration about the lack of concise, easy-to-read information from Australia about Mayer-Rokitansky-Kuster-Hauser (MRKH) Syndrome. 


I aim to provide the most essential information for girls who have just been diagnosed and their friends and family who wish to support them. It is a work in progress and I will add to it as often as I can. 


Throughout the site is the basic definition and explaination of MRKH, a place where I can publish different women's reactions at being diagnosed, a place where you can learn of different treatment options available and decide for yourself. I felt it important to include my story so as to explain my motivation for making this site. Last but not least is the blog. I'm not sure how to set it up just yet but I will try to chrinicle the rest of my experiences and allow others to do the same.

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All information contained on my web site has been collected from personal research and experience alone. I am not a professional. I strive to make all information correct, the last thing I would want to do is mislead anyone going through the emotional roller coaster of MRKH diagnosis. Having said this I am human and I do make mistakes. Please notify me if I have made a mistake.